[et_pb_section fb_built=”1″ fullwidth=”on” admin_label=”section” _builder_version=”3.22″ background_color=”#2ea3f2″ use_background_color_gradient=”on” background_image=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/06\/shutterstock_316367753_family_walking_cropped_1160X392.jpg” background_position=”bottom_center”][et_pb_fullwidth_header title=”Family and Patient Perspectives” admin_label=”Hero Section” _builder_version=”3.16″ title_level=”h2″ title_font=”Montserrat|500|||||||” title_font_size=”50px” title_line_height=”1.4em” content_font_size=”22px” content_line_height=”1.8em” subhead_font=”||||” background_color=”rgba(255, 255, 255, 0)” use_background_color_gradient=”on” background_color_gradient_start=”rgba(89,146,193,0.93)” background_color_gradient_end=”rgba(116,158,193,0.39)” custom_button_one=”on” button_one_text_size=”16px” button_one_bg_color=”#6eba01″ button_one_border_color=”#6eba01″ button_one_border_radius=”0″ button_one_letter_spacing=”2″ button_one_font=”Montserrat|||on|” button_one_use_icon=”off” custom_button_two=”on” button_two_text_size=”16px” button_two_border_color=”#ffffff” button_two_border_radius=”0″ button_two_letter_spacing=”2″ button_two_font=”Montserrat|||on|” button_two_use_icon=”off” module_alignment=”left” animation_style=”fade” button_one_text_color_hover=”#6eba01″ button_two_text_color_hover=”#6eba01″ button_one_border_color_hover=”#ffffff” button_two_border_color_hover=”#ffffff” button_one_border_radius_hover=”0″ button_two_border_radius_hover=”0″ button_one_letter_spacing_hover=”2″ button_two_letter_spacing_hover=”2″ button_one_bg_color_hover=”#ffffff” button_two_bg_color_hover=”#ffffff” saved_tabs=”all” button_one_text_size__hover_enabled=”off” button_two_text_size__hover_enabled=”off” button_one_text_color__hover_enabled=”on” button_one_text_color__hover=”#6eba01″ button_two_text_color__hover_enabled=”on” button_two_text_color__hover=”#6eba01″ button_one_border_width__hover_enabled=”off” button_two_border_width__hover_enabled=”off” button_one_border_color__hover_enabled=”on” button_one_border_color__hover=”#ffffff” button_two_border_color__hover_enabled=”on” button_two_border_color__hover=”#ffffff” button_one_border_radius__hover_enabled=”on” button_one_border_radius__hover=”0″ button_two_border_radius__hover_enabled=”on” button_two_border_radius__hover=”0″ button_one_letter_spacing__hover_enabled=”on” button_one_letter_spacing__hover=”2″ button_two_letter_spacing__hover_enabled=”on” button_two_letter_spacing__hover=”2″ button_one_bg_color__hover_enabled=”on” button_one_bg_color__hover=”#ffffff” button_two_bg_color__hover_enabled=”on” button_two_bg_color__hover=”#ffffff”][\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row use_custom_gutter=”on” gutter_width=”2″ column_padding_mobile=”on” custom_padding_last_edited=”on|phone” _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_padding=”27px|0px|27px|0px” custom_padding_tablet=”49px|||” custom_padding_phone=”19px|||” column_structure=”1_3,1_3,1_3″][et_pb_column type=”1_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_blurb title=”Maddox” url=”https:\/\/utahchd.org\/test-home-page-2\/children\/a-patients-perspective-maddox\/” image=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/05\/Maddox_cropped.jpg” admin_label=”Maddox” _builder_version=”4.9.3″ header_font=”Poppins|600|||||||” header_text_align=”left” header_text_color=”#486066″ header_line_height=”1.3em” body_font=”Open Sans||||||||” body_text_align=”left” body_text_color=”#486066″ body_line_height=”2em” background_color=”#ffffff” custom_margin=”|||” custom_padding=”40px|30px|40px|30px” animation_style=”fade” animation=”off” hover_enabled=”0″ border_radii=”on|6px|6px|6px|6px” box_shadow_style=”preset1″ box_shadow_vertical=”10px” box_shadow_blur=”24px” box_shadow_spread=”6px” box_shadow_color=”rgba(0,0,0,0.06)” sticky_enabled=”0″]If you\u2019d asked us\u00a08 years ago how CHD affects our family, we\u2019d\u00a0be telling a different story. The first 3 years of Maddox\u2019s life, our world revolved around surgeries, appointments, and medication. It was difficult to balance our time between all of that and our then…<\/p>\n
Read more<\/a> Read more<\/a> Read more<\/a> Read more<\/a> Read more<\/a>
\n[\/et_pb_blurb][et_pb_blurb title=”Joseph” url=”https:\/\/utahchd.org\/test-home-page-2\/adults-v2\/a-patients-perspective-joseph\/” image=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/02\/3_resized2.jpg” admin_label=”Joseph” _builder_version=”4.9.3″ header_font=”Poppins|600|||||||” header_text_align=”left” header_text_color=”#486066″ header_line_height=”1.3em” body_font=”Open Sans||||||||” body_text_align=”left” body_text_color=”#486066″ body_line_height=”2em” background_color=”#ffffff” custom_margin=”|||” custom_padding=”40px|30px|40px|30px” animation_style=”fade” animation=”off” hover_enabled=”0″ border_radii=”on|6px|6px|6px|6px” box_shadow_style=”preset1″ box_shadow_vertical=”10px” box_shadow_blur=”24px” box_shadow_spread=”6px” box_shadow_color=”rgba(0,0,0,0.06)” sticky_enabled=”0″]My name is Joseph and I was born with CHD (Congenital heart disease). My first open heart surgery was the day I was born.\u00a0I had my second surgery when I was just over 1 year old and my 3rd\u00a0when I was 7. To be honest, I don\u2019t remember…<\/p>\n
\n[\/et_pb_blurb][et_pb_blurb title=”Matthew” url=”https:\/\/utahchd.org\/test-home-page-2\/adults-v2\/patient-perspective-matthew\/” icon_placement=”left” admin_label=”Matthew” _builder_version=”4.9.3″ header_font=”Poppins|600|||||||” header_text_align=”left” header_text_color=”#486066″ header_line_height=”1.3em” body_font=”Open Sans||||||||” body_text_align=”left” body_text_color=”#486066″ body_line_height=”2em” background_color=”#ffffff” custom_margin=”|||” custom_padding=”40px|30px|40px|30px” animation_style=”fade” animation=”off” hover_enabled=”0″ border_radii=”on|6px|6px|6px|6px” box_shadow_style=”preset1″ box_shadow_vertical=”10px” box_shadow_blur=”24px” box_shadow_spread=”6px” box_shadow_color=”rgba(0,0,0,0.06)” sticky_enabled=”0″]I was born with a condition called coarctation of the aorta and bicuspid aortic valve. Around 5 days of age my parents noticed I was breathing fast and took me to the local hospital. I was life-flighted to the children’s hospital and one day later had…<\/p>\n
\n[\/et_pb_blurb][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_blurb title=”Carter” url=”https:\/\/utahchd.org\/test-home-page-2\/adolescents\/a-patients-perspective-carter\/” image=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/01\/DSC_8956-Carter_resized.jpg” admin_label=”Carter” _builder_version=”4.9.3″ header_font=”Poppins|600|||||||” header_text_align=”left” header_text_color=”#486066″ header_line_height=”1.3em” body_font=”Open Sans||||||||” body_text_align=”left” body_text_color=”#486066″ body_line_height=”2em” background_color=”#ffffff” custom_margin=”|||” custom_padding=”40px|30px|40px|30px” animation_style=”fade” animation_delay=”100ms” animation=”off” hover_enabled=”0″ border_radii=”on|6px|6px|6px|6px” box_shadow_style=”preset1″ box_shadow_vertical=”10px” box_shadow_blur=”24px” box_shadow_spread=”6px” box_shadow_color=”rgba(0,0,0,0.06)” sticky_enabled=”0″]My mom and dad tell me that my heart is different.\u00a0 It\u2019s different than kids my age.\u00a0 Sometimes I feel different.\u00a0 I can\u2019t run as fast and as far as other kids.\u00a0 My body has to work twice as hard as they do.\u00a0 But I feel like I am the same in other ways.\u00a0\u00a0I go to school like…<\/p>\n
\n[\/et_pb_blurb][et_pb_blurb title=”Nathaniel” url=”https:\/\/utahchd.org\/test-home-page-2\/adults-v2\/a-parents-perspective-joseph-and-nathaniel\/” image=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/02\/DSC_0111_resized2.jpg” admin_label=”Nathaniel” _builder_version=”4.9.3″ header_font=”Poppins|600|||||||” header_text_align=”left” header_text_color=”#486066″ header_line_height=”1.3em” body_font=”Open Sans||||||||” body_text_align=”left” body_text_color=”#486066″ body_line_height=”2em” background_color=”#ffffff” custom_margin=”|||” custom_padding=”40px|30px|40px|30px” animation_style=”fade” animation_delay=”100ms” animation=”off” hover_enabled=”0″ border_radii=”on|6px|6px|6px|6px” box_shadow_style=”preset1″ box_shadow_vertical=”10px” box_shadow_blur=”24px” box_shadow_spread=”6px” box_shadow_color=”rgba(0,0,0,0.06)” sticky_enabled=”0″]My name is Wendy and my third child, Joseph, and my fifth child, Nathaniel, were born with complex (meaning multiple defects) congenital heart disease.\u00a0\u00a0Today both boys are adults who are responsible for ensuring that they receive the correct health…<\/p>\n
\n[\/et_pb_blurb][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_blurb title=”Carter’s Parents” url=”https:\/\/utahchd.org\/test-home-page-2\/adolescents\/a-patients-perspective-parents\/” image=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/01\/DSC_8831-Gourley-Family-shot_resized_400.jpg” admin_label=”Carter’s Parents” _builder_version=”4.9.3″ header_font=”Poppins|600|||||||” header_text_align=”left” header_text_color=”#486066″ header_line_height=”1.3em” body_font=”Open Sans||||||||” body_text_align=”left” body_text_color=”#486066″ body_line_height=”2em” background_color=”#ffffff” custom_margin=”|||” custom_padding=”40px|30px|40px|30px” animation_style=”fade” animation_delay=”200ms” animation=”off” hover_enabled=”0″ border_radii=”on|6px|6px|6px|6px” box_shadow_style=”preset1″ box_shadow_vertical=”10px” box_shadow_blur=”24px” box_shadow_spread=”6px” box_shadow_color=”rgba(0,0,0,0.06)” sticky_enabled=”0″]So, he\u2019s OK now then?\u00a0 This is a question I received whenever I tell the story of my son\u2019s journey thus far as a \u2018heart kiddo\u2019 (child with congenital heart disease).\u00a0\u00a0This is such a relative question.\u00a0 OK meaning is he going to live?\u00a0 OK meaning is he going…<\/p>\n