[et_pb_section fb_built=”1″ fullwidth=”on” admin_label=”section” _builder_version=”3.22″ background_color=”#2ea3f2″ use_background_color_gradient=”on” background_image=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/03\/Babies_resize_1500.png”][et_pb_fullwidth_header title=”CHDs and Children” admin_label=”Hero Section” _builder_version=”3.16″ title_level=”h2″ title_font=”Montserrat|500|||||||” title_font_size=”50px” title_line_height=”1.4em” content_font_size=”22px” content_line_height=”1.8em” subhead_font=”||||” background_color=”rgba(255, 255, 255, 0)” use_background_color_gradient=”on” background_color_gradient_start=”rgba(89,146,193,0.93)” background_color_gradient_end=”rgba(116,158,193,0.39)” custom_button_one=”on” button_one_text_size=”16px” button_one_bg_color=”#6eba01″ button_one_border_color=”#6eba01″ button_one_border_radius=”0″ button_one_letter_spacing=”2″ button_one_font=”Montserrat|||on|” button_one_use_icon=”off” custom_button_two=”on” button_two_text_size=”16px” button_two_border_color=”#ffffff” button_two_border_radius=”0″ button_two_letter_spacing=”2″ button_two_font=”Montserrat|||on|” button_two_use_icon=”off” module_alignment=”left” animation_style=”fade” button_one_text_color_hover=”#6eba01″ button_two_text_color_hover=”#6eba01″ button_one_border_color_hover=”#ffffff” button_two_border_color_hover=”#ffffff” button_one_border_radius_hover=”0″ button_two_border_radius_hover=”0″ button_one_letter_spacing_hover=”2″ button_two_letter_spacing_hover=”2″ button_one_bg_color_hover=”#ffffff” button_two_bg_color_hover=”#ffffff” saved_tabs=”all” button_one_text_size__hover_enabled=”off” button_two_text_size__hover_enabled=”off” button_one_text_color__hover_enabled=”on” button_one_text_color__hover=”#6eba01″ button_two_text_color__hover_enabled=”on” button_two_text_color__hover=”#6eba01″ button_one_border_width__hover_enabled=”off” button_two_border_width__hover_enabled=”off” button_one_border_color__hover_enabled=”on” button_one_border_color__hover=”#ffffff” button_two_border_color__hover_enabled=”on” button_two_border_color__hover=”#ffffff” button_one_border_radius__hover_enabled=”on” button_one_border_radius__hover=”0″ button_two_border_radius__hover_enabled=”on” button_two_border_radius__hover=”0″ button_one_letter_spacing__hover_enabled=”on” button_one_letter_spacing__hover=”2″ button_two_letter_spacing__hover_enabled=”on” button_two_letter_spacing__hover=”2″ button_one_bg_color__hover_enabled=”on” button_one_bg_color__hover=”#ffffff” button_two_bg_color__hover_enabled=”on” button_two_bg_color__hover=”#ffffff”][\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” column_structure=”3_4,1_4″][et_pb_column type=”3_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”3.27.4″ text_font_size=”16px”]<\/p>\n
CHD stands for c<\/u><\/strong>ongenital h<\/u><\/strong>eart d<\/u><\/strong>efect or d<\/u><\/strong>isease.\u00a0 A CHD is a problem with your child\u2019s heart that is found at birth or sometimes before birth. \u00a0There is more than one type of CHD and some are more serious than others.\u00a0 Heart defects are the most common birth defect and affects nearly one in every 120 babies born.\u00a0 Serious CHDs are often called critical congenital heart defects or critical CHDs, because they typically require procedures or surgery within the first year of a baby\u2019s life. \u00a0About 1 in 400 births is affected by a critical CHD.<\/p>\n Click here<\/a> for more information about some common congenital heart defects. Before your baby is born, your doctor may look at your baby with an ultrasound. One of the things your doctor will look for is to see if there is anything potentially wrong with your baby\u2019s heart; however, not all heart defects can be caught using an ultrasound.\u00a0 Doctors can also use a fetal echocardiogram to see the structure of the baby\u2019s heart and watch how it functions.\u00a0 In Utah, within the first 24-48 hours after your baby is born, a painless and non-invasive screening procedure, called pulse oximetry screening, is now required to be performed at all Utah birthing facilities.\u00a0 A failed pulse oximetry screening on a newborn baby notifies the doctor that some extra tests are needed to see if there is anything wrong with the baby\u2019s heart.\u00a0 Some other diagnostic methods your doctor might use include listening for murmurs with a stethoscope, echocardiograms, electrocardiograms, chest x-ray, cardiac catheterization, or cardiovascular MRI.<\/p>\n To learn more about pulse oximetry screening in Utah, click here<\/u><\/a>. Your child may undergo different treatments or procedures depending on the type of heart defect he\/she has and how severe it is.\u00a0 Some of the most common treatments or procedures include catheterization techniques, open-heart surgery, heart transplant, medications. If you have a child with a congenital heart defect, you may notice that he\/she grows a little slower than children his\/her age.\u00a0 They might also take longer to achieve developmental milestones, such as sitting up on their own, crawling, or becoming potty trained.\u00a0 Therapists such as occupational therapists (OT) and\/or nutritional specialists may be needed to help your child maintain weight and continue to grow.\u00a0 Regular checkups with your child\u2019s pediatrician will help you and your doctor to monitor your child\u2019s growth and development.\u00a0 If you have any questions or concerns about your child\u2019s growth, consult your family doctor or child\u2019s pediatrician for more information. In general, children with a CHD function at age-appropriate levels; however, some children may be at higher risk for intellectual and language disabilities, attention disorders, or deficits in gross motor skills (your child\u2019s ability to control different parts of his\/her body).\u00a0 This may include difficulties playing with certain toys, physical activity, or poor hand-eye coordination.\u00a0 Behaviorally and emotionally, your child will act like other children his\/her age.\u00a0 Depending on the child, psychological and emotional issues related to their CHD can emerge, but this typically doesn\u2019t occur until later in adolescence (click here<\/a> for more information about CHDs in Adolescence) when your child may become more aware of his\/her condition or faces certain challenges.<\/p>\n If you have any concerns about any aspect of your child\u2019s development, consult your family doctor or child\u2019s pediatrician for more information.\u00a0 Your doctor may get you in touch with another specialist, such as an occupational or speech therapist, or psychologist to help with difficulties in motor skills or behavioral issues.[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/06\/shutterstock_1015482046_child_development_400X266.jpg” align_tablet=”center” align_last_edited=”on|desktop” admin_label=”Image – Child development” _builder_version=”3.23″ animation_direction=”right” box_shadow_style=”preset2″][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” column_structure=”1_3,2_3″][et_pb_column type=”1_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/06\/shutterstock_704737204_child_school_learning_450X308.jpg” align_tablet=”center” align_last_edited=”on|desktop” admin_label=”Image – Child school” _builder_version=”3.23″ animation_direction=”left” box_shadow_style=”preset1″][\/et_pb_image][\/et_pb_column][et_pb_column type=”2_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.9.3″ text_font_size=”16px” hover_enabled=”0″ sticky_enabled=”0″]<\/p>\n Most children with CHD attend school and fully participate.\u00a0 Some children may have delays in learning and may require special educational services.\u00a0 Check with your child\u2019s physician, school, and\/or school district to see what services are available for him\/her and how they best can help your child to learn and succeed.<\/p>\n Check out the Utah Parent Center<\/a>\u00a0for more information about school services available in Utah. Raising a child with a CHD can be a challenging process. Resources and support from the medical community and parent groups are available to assist families affected by CHD. Knowing what to expect can help your family gain an understanding of your child\u2019s growth and development as well as prepare your family for dealing with the medical challenges and social and family issues, which may occur during childhood.<\/p>\n As your child continues to grow, you may find that each age and stage has its own unique challenges.\u00a0 If you have other children, it\u2019s also important to make sure that their feelings, uncertainties, and fears are adequately and appropriately addressed.\u00a0 But, you don\u2019t need to do it alone.\u00a0 If you are experiencing troubles with stress, depression and\/or anxiety, seek care from a mental health professional.\u00a0 There is also a large support network of families in Utah who have a child or family member with a CHD that can relate.<\/p>\n Click here<\/a> to see the support groups in Utah and around the country. Learn more about covering the cost of care.<\/p>\n IHH Family Grant<\/a><\/p>\n Tax Deductions<\/a> Children born with a congenital heart defect are living longer lives due to advances in knowledge, medical treatment and technology.\u00a0 Current estimates from research indicate that approximately 2 million people are living with a CHD in the United States.\u00a0 Children and adolescents with a CHD must visit their pediatric cardiologist on a regular basis to check for certain health problems, such as arrhythmias (irregular heart beat), or infections or weakness of the heart muscle.\u00a0 As your child continues to grow into adolescence, it will be important to think about transitioning and transferring their care to an adult congenital heart specialist.\u00a0 See the Adolescents<\/a> and Adults<\/a> sections for more information on transition of care. American Heart Association. CHD\u2019s impact on children. 2018. American Heart Association. http:\/\/www.heart.org\/HEARTORG\/Conditions\/CongenitalHeartDefects\/TheImpactofCongenitalHeartDefects\/CHDs-Impact-on-Children_UCM_307115_Article.jsp#.WoympainGUl<\/a>. Accessed: February 20, 2018.<\/p>\n Division of Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention. Congenital Heart Defects (CHDs). 2018. Centers for Disease Control and Prevention website. https:\/\/www.cdc.gov\/ncbddd\/heartdefects\/index.html. Accessed February 22<\/a>, 2018.<\/p>\n Hetherington R. The child with congenital heart disease. 2009. The Hospital for Sick Children. http:\/\/www.aboutkidshealth.ca\/En\/ResourceCentres\/CongenitalHeartConditions\/LookingAhead\/TheChildWithCongenitalHeartDisease\/Pages\/default.aspx<\/a>. Accessed February 20, 2018.<\/p>\n
\n[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/06\/shutterstock_113300053_ASD_cropped_530X485.png” align_tablet=”center” align_last_edited=”on|desktop” admin_label=”Image – ASD” _builder_version=”3.23″ animation_direction=”right” box_shadow_style=”preset2″][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” column_structure=”1_3,2_3″][et_pb_column type=”1_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/06\/shutterstock_1008440716_baby_exam_400X267.jpg” align_tablet=”center” align_last_edited=”on|desktop” admin_label=”Image – Baby exam” _builder_version=”3.23″ animation_direction=”left” box_shadow_style=”preset1″][\/et_pb_image][\/et_pb_column][et_pb_column type=”2_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”3.27.4″ text_font_size=”16px”]<\/p>\nHow are CHDs Diagnosed?<\/strong><\/h1>\n
\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” column_structure=”2_3,1_3″][et_pb_column type=”2_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”3.27.4″ text_font_size=”16px”]<\/p>\nTreatments and Procedures for Children with a CHD<\/strong><\/h1>\n
\n[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/06\/shutterstock_207697198_heart_puzzle_400X320.jpg” align_tablet=”center” align_last_edited=”on|desktop” admin_label=”Image – Heart puzzle” _builder_version=”3.23″ animation_direction=”right” box_shadow_style=”preset2″][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” column_structure=”1_4,3_4″][et_pb_column type=”1_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/06\/shutterstock_129701258_child_growth_300X450.jpg” align_tablet=”center” align_last_edited=”on|desktop” admin_label=”Image – Child growth” _builder_version=”3.23″ animation_direction=”left” box_shadow_style=”preset1″][\/et_pb_image][\/et_pb_column][et_pb_column type=”3_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”3.27.4″ text_font_size=”16px”]<\/p>\nGrowth of your Child with CHD<\/strong><\/h1>\n
\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” column_structure=”2_3,1_3″][et_pb_column type=”2_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.9.3″ text_font_size=”16px” hover_enabled=”0″ sticky_enabled=”0″]<\/p>\nDevelopment of your Child with CHD<\/strong><\/h1>\n
School and Learning<\/strong><\/h1>\n
\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” column_structure=”2_3,1_3″][et_pb_column type=”2_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.9.3″ text_font_size=”16px” hover_enabled=”0″ sticky_enabled=”0″]<\/p>\nParenting and Finding Support<\/strong><\/h1>\n
\n[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/06\/shutterstock_246686527_parenting_500X333.jpg” align_tablet=”center” align_last_edited=”on|desktop” admin_label=”Image – Parent-child” _builder_version=”3.23″ animation_direction=”right” box_shadow_style=”preset2″][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” column_structure=”1_3,2_3″][et_pb_column type=”1_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/06\/shutterstock_591470369_calculator_450X300.jpg” align_tablet=”center” align_last_edited=”on|desktop” admin_label=”Image – Calculator” _builder_version=”3.23″ animation_direction=”left” box_shadow_style=”preset1″][\/et_pb_image][\/et_pb_column][et_pb_column type=”2_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”3.27.4″ text_font_size=”16px” hover_enabled=”0″ sticky_enabled=”0″]<\/p>\nFinancial Support<\/strong><\/h1>\n
\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” column_structure=”2_3,1_3″][et_pb_column type=”2_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.9.3″ text_font_size=”16px” hover_enabled=”0″ sticky_enabled=”0″]<\/p>\nLooking to the Future<\/strong><\/h1>\n
\n[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/utahchd.org\/wp-content\/uploads\/2018\/06\/shutterstock_529502848_child_dad_shoulders_450X249.jpg” align_tablet=”center” align_last_edited=”on|desktop” admin_label=”Image – Child dad shoulders” _builder_version=”3.23″ box_shadow_style=”preset2″][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row module_class=” et_pb_row_fullwidth” _builder_version=”3.25″ background_color=”rgba(127,165,193,0.36)” width=”89%” width_tablet=”80%” width_last_edited=”on|desktop” max_width=”89%” max_width_tablet=”80%” max_width_last_edited=”on|desktop” make_fullwidth=”on”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_blurb title=”Additional Resources” url=”https:\/\/utahchd.org\/test-home-page-2\/children\/links-resources-children\/” use_icon=”on” font_icon=”%%52%%” icon_color=”#e09900″ icon_placement=”left” _builder_version=”4.9.3″ header_level=”h1″ header_font=”|700|||||||” body_font_size=”16″ hover_enabled=”0″ sticky_enabled=”0″]Click here<\/u><\/a> for additional links to CHD resources in Utah and around the country.
\n[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_toggle title=”References” icon_color=”#c1c1c1″ _builder_version=”3.0.105″ background_color=”#ffffff” border_color_top=”#0c71c3″]American Academy of Pediatrics. Challenges faced by parents of children with congenital heart disease. 2018. American Academy of Pediatrics. https:\/\/www.healthychildren.org\/english\/health-issues\/conditions\/heart\/pages\/challenges-faced-by-parents-of-children-with-congenital-heart-disease.aspx<\/a>. Accessed February 20, 2018.<\/p>\n