A Patient’s Perspective
My mom and dad tell me that my heart is different. It’s different than kids my age. Sometimes I feel different. I can’t run as fast and as far as other kids. My body has to work twice as hard as they do. But I feel like I am the same in other ways. I go to school like them and I have a lot of friends. I hear stories and see pictures about when I was a baby I had more problems that the doctors had to fix. When I was born I was almost going to die because my heart wasn’t working well. They brought me from a bridge to Primary Children’s Hospital from University Hospital. My mom couldn’t see me until night. The doctors helped me get better so I can come home. I had to have a lot of surgeries I don’t remember most of them. I don’t go to the hospital for surgeries a lot anymore, just sometimes. I just got my pacemaker changed and I was scared but they gave me medicine to make me not worry as much. And they did it really fast. And they were really good doctors. I didn’t know the doctor that helped me but I felt safe because I know the doctors want to help me.
The doctor checks my heart and tells my mom about how I’m doing. I don’t understand everything that they are talking about but I know that they are working hard to keep me safe and strong. I used to see him a lot but I don’t go a lot anymore because I’m older and stronger and I’m 10 years old. Just two times a year. I like to go visit with him. He asks me how I feel and he teases me about girls. I know that he wants to help me feel better and be strong. He makes sure I have good medicine for my heart.
I’m excited for what’s in the future. We wonder what cool things they will invent for my heart and my pacemaker. Will there be a pacemaker that is super small? Or will you just put it by your chest and it will work? Maybe one day maybe they can charge me at night like a phone battery. There are so many cool things that have happened already since I have been born and I know it will even be better for me when I’m older. I know doctors help my heart be better and they want me to be like other kids. I am ready to experience other things that can help my heart in the future.