The UTah Congenital Heart Defect project (UTCHD) is a project funded by the Centers for Disease Control and Prevention (CDC) to better understand the prevalence of congenital heart defects (CHDs) in Utah and provide individuals and family members of individuals with CHDs living in or around Utah with education and resources.

Pulse Oximetry Screening for CCHDs

The Utah Department of Health, working in collaboration with the University of Utah and Intermountain Medical Center (IMC), conducted 2 six-month pilots to examine what it would take to implement pulse oximetry screening and what benefits it would have in Utah.


National Pediatric Cardiology Quality Improvement Collaborative

Pediatric Heart Transplant Society

Currently contributing to the registry of the Pediatric Heart Transplant Society.


Currently contributing to the registry of the International Society of Heart and Lung Transplantation.

Congenital Heart Surgeons Society

Currently enrolling:

  • LVOTO-Critical LV Outflow Tract stenosis
  • Tricuspid Atresia
  • AVSD-Atrioventricular Septal Defect
  • AAOCA-Anomalous Aortic Origin of Coronary Artery

Closed to enrollment but annual follow-up continues:

  • Complete Transposition of the Great Vessels
  • Pulmonary Conduit